$12 for
May 12, 2014
Awareness Day and help ensure the success of this year's events and programs. Your contribution is the first letter of "CARE" and is needed to make the programs represented by the other three letters successful. Together we make a difference!
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Fibromyalgia & Chronic Pain
LIFE
Winter 2014
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Awareness Day Events 2014
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Walk To CURE FM Wolfe Park
May 2014
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Book of the Month
"In this book, I will argue that lack of adequate pain control is one of the most urgent health problems in America. In my research over the last five years, I have interviewed nearly 200 scientists and physicians, as well as countless patients, a few lawyers, and a handful of government officials.
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News from the Research Front
Pain Sensitivity is Related to Grey Matter
Pain is an extremely personal experience that
varies substantially among individuals. In a study created at Wake Forest School of Medicine and printed in the December 2013 issue of PAIN, a group of scientists investigated the relationship between grey matter density across the whole brain and interindividual differences in pain sensitivity in 116 healthy volunteers (62 women and 54 men).
Voxel-based morphometry (VBM) was used to map the brain and record variances. VBM is a neuroimaging analysis technique that allows investigation of focal differences in brain anatomy, using the statistical approach of statistical parametric mapping. Read more...
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2013 American College of Rheumatology Meeting
At the November 2013 American College of Rheumatology annual meeting held in San Diego there were 107 scientific fibromyalgia posters. The scope of scientific study was varied and any interesting and new ideas were shared. We will continue to give you information that was shared during the meeting including the following articles. There is a link to the full abstract at the end of each of these short articles. Read more...
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The Straight Neck in Fibromyalgia
Conditions related to the cervical spine continue to be of interest in the definition and treatment of fibromyalgia (FM). Several papers have been published regarding cervical stenosis (compression of the spinal cord in the neck), including a recent publication in the Pain Management journal about positional cervical cord compression and the correct MRI to diagnose the condition in FM patients. Read more...
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Are You Ready for
Fibromyalgia Awareness Day?
Just a reminder that May 12th is Fibromyalgia Awareness Day
The National Fibromyalgia & Chronic Pain Association (NFMCPA) is gearing up for this year's national May 12 Fibromyalgia Awareness Day activities. The 2013-14 CARE & Make Fibromyalgia Visible campaign encourages people outside of the fibromyalgia community to help support and spread awareness of fibromyalgia and its life-altering effects. Read more...
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Pain Patients Rights to Treatment
The United States Food and Drug Administration, the Drug Enforcement Agency, and the Office of National Drug Control Policy have declared that the United States is in the midst of a prescription opioid abuse epidemic; 17,000 overdose related deaths in 2012. Appropriately, they and other federal agencies have taken action.
However, the unanticipated result of their actions is that people in pain, who should be administered pain medications based on their physicians' recommendations, are being kept from adequate pain relief by pharmacies that in some instances have been filling the same prescriptions for more than ten years. . Read more...
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NFMCPA Salutes Donna Marsh
Leader Against Pain
Donna Marsh is a National Fibromyalgia & Chronic Pain Leader Against Pain who currently lives in Nashville, Tenn. (population 600,000+); but in just a few days she will move about 60 miles east to Baxter (pop. 1,300) to be closer to her parents. Donna's 20-year-old son will remain in Nashville, while her older son, who soon hits the big 3-0, lives in Portland, Ore., with his beautiful fiancée. That means it will just be her and, in her words, the "Hounds of Hell," a little diva of a Corgi and one horse of a Weimaraner, off on this new adventure. Read more...
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The NFMCPA wants to hear from you!
Take Our Community Needs Survey
In an effort to serve you better we have created a survey that encompasses several levels of interaction with our constituents. Over time resources needed by people with fibromyalgia and chronic pain evolve and change; what is very important one day is not so important the next day. Read more...
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Folly Pogs 5th Annual
Fibromyalgia Research Conference
On Friday, March 28 through Monday, March 31, 2014 the 5th Fibromyalgia Conference will be held at Chichester Park Hotel in West Sussex, England.
This is a 4 day, 3 night event dedicated to the education of fibromites with some fun and laughter in the evenings. The conference objective is to invite FM speakers from abroad to Big-Ben-clock-tower share news of research and progress in the fight to find a cure. Read more...
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Animal Assisted Therapy
If you have fibromyalgia, you know there's no quick fix-no pill, procedure, or therapy that quickly makes symptoms disappear. Fibromyalgia is a condition that relies heavily on combining many types of therapies together, including medications, exercise, nutritional, and non-drug therapies. Most people with fibromyalgia use complementary and alternative therapies that are designed to supplement and boost the benefits from traditional medicine. A survey from the Mayo Clinic found that the complementary therapies most commonly used for fibromyalgia are exercise, spiritual healing, massage, chiropractic treatment, and supplements. Read more...
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We Are Listening
My Invisible Life by Elizabeth Christy
Elizabeth Christy, a person with fibromyalgia, wrote on the blog "My Invisible Life" and put into words what most people afflicted with this disorder feel emotionally and physically. Last month her blog post was shared on the NFMCPA Facebook page where she received over 1,000 likes on her post, along with many positive comments. The last paragraph of her blog post is so uplifting that we are quoting it to share her hope with everyone for brighter days: Read more...
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Save the Date!
Wednesday
April 23, 7-8:30 ET Neuropathy Association
National Fibromyalgia & Chronic Pain Association
Facebook chat on Small Fiber Neuropathy and Fibromyalgia
Thursday
April 24, 8-9:30 ET
Pain Pathways Hosts the
National Fibromyalgia & Chronic Pain Association
Facebook chat on Fibromyalgia
Recent research presentation along with live Q&A
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